Recent comments in /f/InternetIsBeautiful

ainosleep t1_iuwxrln wrote

Reply to comment by drugsr4lozers in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

> I've been doing some resistance training for some years since I was diagnosed. Although I felt good after exercise i.e. w.r.t pain reduction it doesn't seem to help with my bone density i.e. If I don't take the bi-phosphate injection for a year; My density drops further even when I didn't change the exercise routine.

> Lately, The pain from exercise itself is becoming greater than the pain from not doing it. So I have dropped couple of routines like weight lifting from my exercise, My next BMD data would probably tell how it has affected my density.

https://www.reddit.com/r/InternetIsBeautiful/comments/ykc49d/when_i_was_32_i_was_told_that_my_bones_were_like/iuukrbk/?utm_source=share&utm_medium=ios_app&utm_name=iossmf&context=3

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Abishek_Muthian OP t1_iuwxo9v wrote

Reply to comment by KarlSayle in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Hi, It was done on purpose. The repo is just a development branch and secrets don't have any real secrets. I committed the file for the ease of reproducibility.

Thanks for watching out.

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centercounterdefense t1_iuwu9uc wrote

Reply to comment by Traevia in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

I hope it hasn't been too much of an issue for you. I've always wondered if I have some kind of bone density issue because I don't seem to be as buoyant as others, if that makes any sense.

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KarlSayle t1_iuwtuio wrote

Reply to When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Hi, great work on the app. Just thought I'd mention your secrets/fragmenta.json has been committed to your repo. Might be worth getting rid of that and changing your secrets if you've not already done so. Keep up the good work!

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Traevia t1_iuwrp0o wrote

Reply to comment by centercounterdefense in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Yes. The biggest thing about it is that I am much much more likely to damage ligaments and tendons instead of bone. This is actually considered far worse as bones heal way easier and with less long term issues.

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ian4real t1_iuwpkrp wrote

Reply to comment by shitmattsays in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Hi. Unfortunately there’s no blood work for mutations, other than genetic testing and biopsy. I haven’t gone to the rare disease clinic. He ran all the usual bone related work-ups, calcium, thyroid, ruling out bone loss etc, review all my many bone densities, looked at X-rays of my spine and hip. Also, the fact I have not broken any bones in my life. He’s a rheumatologist professor at a Medical school. I think my prior doctors were quick to diagnosed me and get me out of the way. In my case I was going to being treated and it wouldn’t have helped. These medications can be dangerous taken for a long time.

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KrautHonkyCracker t1_iuwpkb0 wrote

Reply to comment by Abishek_Muthian in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Wow are you me? Lol I was also diagnosed with osteoporosis at 30 (also male). It's extremely unusual for men our age. Thank you for putting this together! I'm curious what you've been tested for, I've been through many different ones and nothing yet that explain the bone loss

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shitmattsays t1_iuwnl8b wrote

Reply to comment by ian4real in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Hi /u/ian4real - 45M here with similar T-scores as you. Is there a name for this collagen condition? Also, were there any markers in your blood work or specific blood/urine tests that helped with your diagnosis? I did two-years of parathyroid injections with no marked improvement and recently started bisphosphonate treatment. We still don't have cause yet, so we are treating the symptoms and I'm staying off ladders.

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vellant t1_iuwnklu wrote

Reply to comment by Abishek_Muthian in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

YSK There is a Indian registry for osteoporis, we use it from time to time. It’s very uncommon for a 32 year old to be osteoporosis , you need to see an bone and mineral disease expert. They’re usually either endocrinologist or rheumatologist by training.

Sounds like you’re on an anti resorptive medication but that doesn’t address the underlying reason why you’re osteoporotic. It’s just putting on a bandaid. I suggest you seek a second opinion.

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gabenh t1_iuwjmd3 wrote

Reply to comment by Abishek_Muthian in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Hey, I also have a bone disorder as well although it is the opposite of Osteoporosis. Osteoporosis, the bones become less dense and become brittle as a result. I have been diagnosed and been living with Osteopetrosis, an extremely rare disease where bones become more denser and like stone. Not enough osteoclasts are produced in my body to support the denser bone causing them to dissolve and fracture apart. Been a pain but I'm still surviving and things could have been worse.

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meastman1988 t1_iuwj8ki wrote

Reply to When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

This looks incredible!

Nothing is more terrifying than the unknown... And the idea that something is going on with my bones and I don't know about it, terrorizes me more than any idea of a "specific thing" happening to my bones.

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[deleted] t1_iuvwydn wrote

Reply to comment by Abishek_Muthian in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Dude, I developed Sick Sinus Syndrome and Atopic Dermatitis (successfully treated...sort of). I am down with the whole being 70 in your 30s.

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