Recent comments in /f/InternetIsBeautiful

Abishek_Muthian OP t1_iuv522n wrote

Thanks for sharing, I have already faced consequences of brittle bones incl. nearly ending up as a quadriplegic as my cerebral spine fractured without even me knowing about it.

So there's no doubt whether I have brittle bones, The doubts are why I have them and which might very well be a rare disease like yourself instead of Osteoporosis. There are other comments which suggests Hypophosphatia.

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dreamisle t1_iuv3qsp wrote

This is awesome! I have a friend with MS and a background in programming. He recently had to enter assisted living but is attempting to take on some gig work and get back into coding. Definitely going to share your story with him for inspiration. 🙏

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candroid_man t1_iuuypw1 wrote

I don't actually have any use for this project, but I just wanted to thank you on behalf of the FOSS community.

Not a lot of people value the privacy of the users, and as you know most developers use the user as the product. Since this project is free and open source it can help more people, and it just shows you care about the people

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MafiaMommaBruno t1_iuuuqw7 wrote

Okay. That's good to know. I seen pretty resilient so maybe I don't. Glad there's a way to test now. Maybe kids that have to worry about it in the future will get better help.

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ian4real t1_iuutg6h wrote

Wow. Funny story. When I was 22, I was told I had the bones of an 80 year old man (via an impromptu dexa scan, I worked there). I started treatment at that time. And quit a few years into it. I’m over 40 now and a new doctor ran a multitude of tests, and ruled out osteoporosis, instead diagnosing me with a very rare mutation of collagen. Referred me to the Rare Disease Clinic in LA (2 or so in the country). Just thought I’d mention.

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Abishek_Muthian OP t1_iuurz3u wrote

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Abishek_Muthian OP t1_iuurrdt wrote

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Abishek_Muthian OP t1_iuur8mk wrote

I don't think there's concrete answer for that, Like any other disorder which affects only elderly (most of time) it gets little investment for scientific research.

This needs to chance as majority of world population would be old soon.

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microcandella t1_iuuqzm8 wrote

Between you and me I hate finding things like that when it is so irrelevant to what you are actually doing, yet I know from experience how some will freak out about it. Good work!!

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ProDigit t1_iuuquva wrote

I used to have brittle bones from drinking only milk. Too much calcium. Calcium is a brittle and weak mineral.

My bones have become more dense these past 10 years, by ingesting silica supplements (sand). Bones need other minerals to grow strong).

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Abishek_Muthian OP t1_iuuq0vt wrote

You are not alone my friend, There are others in similar age group in the comments here.

Please use Bone Health Tracker with your BMD test report.

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Abishek_Muthian OP t1_iuupjsz wrote

I haven't, My phosphate levels do come low during my blood profile tests which is done for deciding whether I can take the yearly bi-phosphate injection for Osteoporosis; I wonder whether Hypophosphatasia could be the reason.

I also have most of the signs you've pointed out, So I will get tested for Hypophosphatasia.

I cannot appreciate enough on behalf of everyone for bringing awareness to this by commenting.

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PeachTeaKid t1_iuuozag wrote

This incredibly helpful! I was 29 when I was diagnosed with Osteoporosis - its really only been a year that I have known so this will be helpful for me to figure out what works for me.

Im also diabetic so my body said you are never allowed to skip workouts.

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Abishek_Muthian OP t1_iuunr33 wrote

I'm sorry that you have to face this. One of my goals with Bone Health Tracker is to raise awareness about all bone health diseases and to help build better treatments.

Your BMD report would be useful too, Consider using BHT.

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AndrewFGleich t1_iuunoie wrote

Anecdotal reference here, but if it helps you feel better, I managed to "break my hip" (repeated stress-strain fracture) last year while training for a marathon at 32! It's crazy how little science actually goes into "modern medicine" but at least we're getting better at recovering. Good luck!

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