Abishek_Muthian OP t1_iuunicq wrote on November 3, 2022 at 3:16 AM

Reply to comment by phillyvanilly666 in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Thank you, Please consider using Bone Health Tracker with your BMD scan test report.

Abishek_Muthian OP t1_iuun1jp wrote on November 3, 2022 at 3:12 AM

Reply to comment by Fictionarious in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Lol, I'm indeed thinking of posting to r/Neverbrokeabone as well because I need baseline data of BMD from those with healthy bones too.

Abishek_Muthian OP t1_iuumwgv wrote on November 3, 2022 at 3:10 AM

Reply to comment by okawei in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

No hoops, Just not collecting any Protected Health Information (PHI).

Abishek_Muthian OP t1_iuumt5t wrote on November 3, 2022 at 3:10 AM

Reply to comment by microcandella in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Thank you for finding it, I've fixed it.

MafiaMommaBruno t1_iuums0t wrote on November 3, 2022 at 3:09 AM

Reply to When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

How do you find out about bone density and health? I usually only go to a doctor when I desperately need to. Next time I'm in, what do you ask to check?

Edit: I was downvoted for asking a question :(

drugsr4lozers t1_iuukv2m wrote on November 3, 2022 at 2:53 AM

Reply to comment by Abishek_Muthian in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

I mean—do you know what’s the cause of the osteoporosis? Thank you for the information nonetheless

Abishek_Muthian OP t1_iuukrbk wrote on November 3, 2022 at 2:53 AM

Reply to comment by SomeFosterKid in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

I've been doing some resistance training for some years since I was diagnosed. Although I felt good after exercise i.e. w.r.t pain reduction it doesn't seem to help with my bone density i.e. If I don't take the bi-phosphate injection for a year; My density drops further even when I didn't change the exercise routine.

Lately, The pain from exercise itself is becoming greater than the pain from not doing it. So I have dropped couple of routines like weight lifting from my exercise, My next BMD data would probably tell how it has affected my density.

Abishek_Muthian OP t1_iuujzyr wrote on November 3, 2022 at 2:47 AM

Reply to comment by gbraide in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

I understand your pain(literally) my friend.

There's a sense of cosmic injustice when you see that all other patients near you are twice your age.

I suspect that Osteoporosis, Osteopenia currently get only end-of-life treatment as only elderly population get it and people like us are rare.

But, Majority of world population is going to be old by 2050 so its in best interest for everyone to start investing in bone health research right now.

Anyways, Some of my bones are in Osteopenia category as well and our main goal should be to not let it become Osteoporosis as well. Please use Bone Health Tracker with your scan report and submit data for research.

Get in touch with me and I'll help you with it.

vegancookie t1_iuuhvpa wrote on November 3, 2022 at 2:30 AM

Reply to When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

For a minute I thought this was some way of measuring it without medical grade hospital equipment (like xray machines). Very cool nevertheless!

shoeless001 t1_iuuhu87 wrote on November 3, 2022 at 2:30 AM

Reply to When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Sorry you are going through this but kudos for doing something truly useful.

hccr t1_iuug3s4 wrote on November 3, 2022 at 2:17 AM

Reply to When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Woah I’m 29 and just got diagnosed with this last week during a preventive bone scan that turned up already with osteoporosis in the spine and osteopenia in the neck and hips. Thanks so much for this!

Emu1981 t1_iuufagy wrote on November 3, 2022 at 2:10 AM

Reply to comment by meltingpotato in Check where you can watch a movie (or tv show) of your choice in your country by Maker_MG82

>The answer to all of them would be 1337x where I live

I need to utilise a VPN to access any of the torrent websites because our past government decided to kneel at the altar of the MPAA...

Abishek_Muthian OP t1_iuuec9k wrote on November 3, 2022 at 2:04 AM

Reply to comment by dimitarbp in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Thank you, One of the main reasons I built this is to reach to people like yourself.

1. When I asked my doc, Why am I the youngest person among his patients who are on average > 60 years, Why I haven't seen any real progress in my bone health even after years of treatment and shouldn't we find why I'm suffering Osteoporosis at an relatively young age?

His answer was that the BMD data we compare with doesn't include all ethnicities, races and those with pre-existing diseases.

I'm south Indian and I suffer from Achondroplasia. There are huge genetic variations within India, BMD reports compare our data to generalized Asian data.

So, One of my goals in Bone Health Tracker is to help build proper BMD data which accommodates all ethnicities, races and also assess the role of pre-existing diseases for bone health.

2. My doc compares previous reports each year to see the progress of the treatment manually using the figures from my Dexa scan report which as you know are small decimal numbers.

A minor mistake in manually comparing the data can lead to wrong outcome. A typical doctor here sees hundreds of patients per day. A typical patient has no idea about understanding this data and has to completely rely on the doctor to interpret.

With Bone Health Tracker now I can clearly see the progress of the treatment with each new report, There's no manual fiddling with numbers anymore. This was something I needed myself for years now.

Balmerhippie t1_iuud5n0 wrote on November 3, 2022 at 1:55 AM

Reply to comment by Abishek_Muthian in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Did you get your parathyroid checked? Thats what caused it for my wife.

lyinghorizontally t1_iuucrs8 wrote on November 3, 2022 at 1:52 AM

Reply to When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Have you ever heard of Hypophosphatasia? It's an ultra rare metabolic disease that results in soft bones. Classic signs that you may have this is history of fractures, dental issues and bone and joint issues. Consistently low alp levels is a good indicator followed up by a b6 test that would usually return with above normal results. This may or may not pertain to anyone here just figured I'd share. https://softbones.org/ is a great resource for more info.

newwriter365 t1_iuuarwg wrote on November 3, 2022 at 1:38 AM

Reply to comment by gbraide in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

I was diagnosed last month. I’m an annoyingly adamant 10,000 steps/day walker.

I feel like I’ve been scammed. Best of luck to you!

Abishek_Muthian OP t1_iuuajnc wrote on November 3, 2022 at 1:37 AM

Reply to comment by drugsr4lozers in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

No, I just get the same treatment as any other elderly person gets now and they are just temporary measure to be taken every year. So we suffer the consequences of extremely brittle bones.

Taman_Should t1_iuua9ak wrote on November 3, 2022 at 1:35 AM

Reply to When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

Thank Mr. Skeltal

Abishek_Muthian OP t1_iuua4uy wrote on November 3, 2022 at 1:34 AM

Reply to comment by forumwhore in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

I'm 36, Every other patient with my doc is above 60 years old. I believe since Osteoporosis affects only the elderly usually there's not much investment in this area.