Recent comments in /f/IAmA

Zuzublue t1_j5a3yud wrote

This has been an interesting read! I have a friend who suffers with Crohns but is reached the point of defeat and is tired of seeing doctors with no other solutions and nothing working. I’m going to show her this thread and the possibility of remicade and a fecal transplant. As we know, not all doctors are proactive if the patient doesn’t push for new treatments. Thanks for your time and good wishes to you!I think I have to ask a question on an AMA- so when do you think you’re getting released?

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CrohnsBoyTheThird OP t1_j5a2uia wrote

It feels like I'm in a fight for my life so I'll take any weapons I can get!

Ebastine sounds interesting, I'm unsure about how its mechanism of action (antihistamine) would assist but there must be a reason why its helping you.

I'll definetly give this a google.

It always fills my heart with love when strangers take time out of their day to try and help me. Humans are good.

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BigGreenBallOfLuck t1_j5a2i80 wrote

Check out a guy called mkfire and ice on youtube. He does good playthrough, no commentary and he plays well. 4k too. Not sure if he has done Ragnarok though. You don't have to thank me mate, that's what we are here for. Peace fella. If I'm awake at midnight I'll send a happy birthday too. Good luck.

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Sp_Streamer t1_j5a2e6m wrote

I had hospitalized twice. The first time Humira was around I don’t think. It was about 15 years ago. They put me on remicade and it worked instantly for me. It was through IV and I was on it for several months where I had to go to the hospital to get it. Humira I actually just came off of. It started with me taking 4 shots down to 2 then to one a month for years. I had a lot of skin side effects from it but it worked very well. I came off of it because when covid hit I got it and no one knew much so my doctor told me to come off it until I got rid of covid. I did and went back on it but basically built an immunity to it so there was no reason for it. I just take a pill now.

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oskrawr t1_j5a2dpl wrote

Hi there! I know this might sound strange, but have you tried taking Ebastine to help remedy the symptoms? I am not diagnosed with Crohns disease but I've had similar problems and Ebastine has helped me a lot. I have taken one small pill every day for the last 3-4 years and it has made all the difference, and as soon as I stop taking them my issues start to reappear. Might be worth trying, although it's probably a long shot! :-)

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CrohnsBoyTheThird OP t1_j5a20g5 wrote

Thank you mate. Weirdly enough it actually makes my day when strangers show love, so I appreciate you.

I'm rooting for you too.

I also had a little look at your post history and it got me back in the mood for God of War - I can't wait to be discharged so I can replay it, shit, I might even watch all the cutscenes spliced together as a movie on youtube tonight.

Much love lad, thanks for dropping in, wishing you all the best.

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CrohnsBoyTheThird OP t1_j5a0tot wrote

Thank you very much for asking it. I enjoyed writing that.

If you liked it I'd recommend you have a little look at Stoicism. It's a philosophy that I try and live.

Avoid all the macho macho modern bastardisations of it and it's a beautiful heart warming philosophy that I credit with keeping me sane in these hospitals over the years.

Seneca is a great place to start especially "Letters from a Stoic". It's a collection of discovered letters between a famous philosopher and a young man he is mentoring, they dug them up from 2000 years ago and they still move me to tears. They talk about love, grief, anger, sadness, panic attacks and finding your place in the world. They read very modern and it shows you how little us Humans have changed since ancient times - we all still deal with the same issues.

Again, thank you for your lovely question.

much love.

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CrohnsBoyTheThird OP t1_j5a05lu wrote

Hello !

Great question - don't worry about your ignorance ! I know nothing about diabetes or other diseases so no stress !

Crohn's is a disability.

Crohn's isn't like IBS. Crohn's isn't just diarrea and pain and having a funny stomach.

It's infectious flesh tunnels in your organs (Fistulas), internal bleeding, sepsis, increased cancer risk, major surgeries, colostomy bags and shame and fear.

Nobody knows what causes it or what cures it. It's likely an umbrella term for a lot of varied causes that cause the symptoms, chronic and recurrent inflammation in your GI tract and all the complications that come with that.

It's a constant companion that you feel every day and think about thousands of times a day, it's the thing in your life that will always seemingly hold you back and return at the most inopportune times, it's your monkey on your back and there's seemingly no cure.

It feels like an unslayable dragon.

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